Stayin’ Alive

My Catholic upbringing has me feeling guilty.  To paraphrase, “forgive me readers, for I have sinned.  It’s been 10 months since my last post.” But you’re all friends who I’m sure will forgive me.  Thank you.

In those 10 months I dealt with recurring caregiver issues, a new food allergy to dairy, and physical and emotional symptoms of stress.  This has been an odd year, almost like starting over because I have been rethinking nearly every aspect of my care – nutrition and feeding system, all my equipment, and caregiver schedules/duties.  A lot of second-guessing myself. With ALS there has been, for me, 2 years of fighting, 3 years of determination (which got me past the infamous 3-5 year average survival), 4 years of relief and applying myself to be useful, and now I’m in the midst of a few years of adjusting to what has changed from a death sentence into a long-term disability.  Somehow, in my determination to beat the odds, I never mentally prepared for what that would be like! As I look at years stretching before me of being essentially paralyzed, dependent on others and having to ‘put up with’ things not done my way (or even, not done at all), and at the same time feeling the strain that puts on those kind-hearted people who are trying to help, it’s a lot to take in and find a balanced outlook on the situation. 

But still, I am alive and well (other than this niggling little ALS thing), and wanting to get back to writing.  No more waiting for everything else to be resolved!  

9 thoughts on “Stayin’ Alive”

  1. Mara, it’s nice to see a new post from you. You are an inspiration and a blessing to so many! Your strength is truly amazing.


  2. Hi Mara.

    As always, I appreciate your blog. Glad you have resurfaced as you continue to figure out this road you are traveling. Sending good wishes, positive thoughts and some good old Catholic prayers your way.

    Warmest regards,

    Alice P.

    Liked by 1 person

  3. Hi Mara,
    So glad to have you blogging again. I have missed your posts. Sending continued good thoughts and prayers your way.


  4. You are a strong woman who comes from a long line of strong women. We may stumble, my dearest sister, but we rise again with the dawn of each new day to carry on with faith and love.


  5. Hi Mara,

    I miss spending time with you. I think about the time your Dad let Shadow back into the house & it had an alive chipmunk in its mouth. It was so funny. I never know what adventure I find myself when visiting my clients. I pray for you every time I drive by your house. Love you!

    Liked by 1 person

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